A registry of health care information on patients with mild to moderate chronic kidney disease (CKD) could help physicians improve care for affected individuals, according to a study appearing in an upcoming issue of the Clinical Journal of the American Society Nephrology (CJASN). The results suggest that officials could use such a registry to develop a national surveillance system to identify and track various aspects of CKD.
The incidence and health care costs of CKD are growing. A national reporting system that collects health care details on dialysis patients and kidney transplant patients across the United States has helped clinicians and researchers identify ways to improve advanced kidney disease patients' quality of care. No such nationwide database exists for patients with mild to moderate stages of CKD who do not yet require dialysis.
Sankar Navaneethan, MD (Cleveland Clinic) and his colleagues recently developed a kidney disease registry at the Cleveland Clinic based on electronic health care records that could serve as a model for the rest of the country.
The registry at the Cleveland Clinic houses information on the demographics, medical conditions, laboratory details, medications, and other characteristics of 57,276 CKD patients. The investigators verified the information collected in the registry and noted that it is reliable for helping physicians follow the course of disease in patients as they progress from early to later stages of CKD. The registry could also help clinicians evaluate the effectiveness of various treatment strategies in these patients. "This registry, which will interface with other national registries, is uniquely designed to track the management of CKD over the entire care spectrum, ranging from the primary care environment to therapy with dialysis or transplantation," said Dr. Navaneethan.
Study co-authors include Stacey Jolly, MD, Jesse Schold, PhD, Susana Arrigain, Welf Saupe, John Sharp, Jennifer Lyons, James Simon, MD, Martin Schreiber, MD, Anil Jain, MD, and Joseph Nally, MD (Cleveland Clinic).
Disclosures: The authors reported no financial disclosures.
The article, entitled "Development and Validation of an Electronic Health Record-Based Chronic Kidney Disease Registry," will appear online at http://cjasn.
The content of this article does not reflect the views or opinions of The American Society of Nephrology (ASN). Responsibility for the information and views expressed therein lies entirely with the author(s). ASN does not offer medical advice. All content in ASN publications is for informational purposes only, and is not intended to cover all possible uses, directions, precautions, drug interactions, or adverse effects. This content should not be used during a medical emergency or for the diagnosis or treatment of any medical condition. Please consult your doctor or other qualified health care provider if you have any questions about a medical condition, or before taking any drug, changing your diet or commencing or discontinuing any course of treatment. Do not ignore or delay obtaining professional medical advice because of information accessed through ASN. Call 911 or your doctor for all medical emergencies.
Founded in 1966, the American Society of Nephrology (ASN) is the world's largest professional society devoted to the study of kidney disease. Comprised of 11,000 physicians and scientists, ASN continues to promote expert patient care, to advance medical research, and to educate the renal community. ASN also informs policymakers about issues of importance to kidney doctors and their patients. ASN funds research, and through its world-renowned meetings and first-class publications, disseminates information and educational tools that empower physicians.