Public Release:  Don't stop anonymizing data

Report dispels myths of de-identification

Children's Hospital of Eastern Ontario Research Institute

EDMONTON (National Access & Privacy Conference 2011) - June 16, 2011 - Canadian privacy experts have issued a new report (link will go live after embargo lift) today that strongly backs the practice of de-identification as a key element in the protection of personal information. The joint paper from Ontario's Information and Privacy Commissioner, Dr. Ann Cavoukian, and Dr. Khaled El Emam, the Canada Research Chair in Electronic Health Information at the University of Ottawa and the Children's Hospital of Eastern Ontario Research Institute, comes as some privacy policy makers increasingly question the value of de-identification.

Personal information can be routinely de-identified before it is used or disclosed for a wide range of purposes, such as research, where it is not necessary to know the identity of individuals. Recently, however, the practice of de-identification as an effective tool to protect privacy has been challenged by those who claim it is possible to re-identify individuals from seemingly anonymous data. Today's report refutes this position, and further validates that anonymizing data is a reliable, safe and practical way to protect personal information.

Launched at the University of Alberta's National Access and Privacy Conference, the new paper entitled,"Dispelling the Myths Surrounding De-Identification: Anonymization Remains a Strong Tool for Protecting Privacy," shows that the re-identification of properly de-identified information is not, in fact, an easy or trivial task, and rather requires concerted effort on the part of skilled technicians. De-identification is a vital first step in protecting privacy, by drastically reducing the risk that personal information will be used or disclosed for unauthorized or malicious purposes.

"Not only does de-identification protect individual privacy, it also enables the valuable use of information for authorized secondary purposes, such as health research, which benefits not only individuals but society as a whole. This enables the shift from a zero-sum paradigm to a positive-sum paradigm, a key principle of Privacy by Design," says Commissioner Cavoukian.

"De-identification techniques are gaining serious traction and Canadians are leading this conversation abroad," adds Dr. El Emam. "Collaborating with the Commissioner's Office to compile this report is an important achievement. Privacy topics get a lot of attention only when something goes wrong. Today we are sending a positive message that personal information can get protected and utilized for good reasons, in the safest way possible."

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Commissioner Cavoukian will today receive the 2011 Information Access and Protection of Privacy (IAPP) Award from the University of Alberta's Faculty of Extension. This award acknowledges her inclusive leadership role involving both the public and private sectors, and her success in promoting understanding of access to information and privacy rights across the globe.

About the IPC

The Information and Privacy Commissioner is appointed by and reports to the Ontario Legislative Assembly, and is independent of the government of the day. The Commissioner's mandate includes overseeing the access and privacy provisions of the Freedom of Information and Protection of Privacy Act and the Municipal Freedom of Information and Protection of Privacy Act, as well as the Personal Health Information Protection Act, which applies to both public and private sector health information custodians. A vital component of the Commissioner's mandate is helping to educate the public about access and privacy issues.

About the Children's Hospital of Eastern Ontario, Research Institute

Established in 1984, the CHEO Research Institute coordinates the research activities of the Children's Hospital of Eastern Ontario (CHEO) and is one of the institutes associated with the University of Ottawa Teaching Hospitals. The Research Institute brings together health professionals from within CHEO to share their efforts in solving paediatric health problems. It also promotes collaborative research outside the hospital with partners from the immediate community, industry and the international scientific world.

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