Public Release: 

AWARE for All

AWARE for ALL: First educational event in London to address UK barriers to clinical research participation

Ketchum UK

The Center for Information and Study on Clinical Research Participation (CISCRP) is pleased to announce that its first international AWARE for All event will be held in the UK on 7 March, 2016 from 17:00 to 20:00 at London's Camden Centre on Euston Road.

This complementary educational event and health fair is designed to improve understanding about clinical research participation and promote dialogue by connecting patients, researchers, and members of the general public in the local community.

Ken Getz, Founder and Chairman of the Board at CISCRP said: "Medical treatments and understanding about disease cannot advance without patient participation and support from the general public - yet, patient willingness to participate in clinical trials in Europe is waning and general awareness and knowledge about clinical research is very low. The recent tragedy in France has also raised concerns about the safety, risks and benefits of taking part in clinical trials. These are among the topics that we are here to address. The launch of our first international event in London reflects our aim to empower and educate the British public and patient communities to make more informed decisions about clinical research."

At the event, which is being run in collaboration with the European Patients' Academy on Therapeutic Innovation (EUPATI), the European Patients Forum, and Merck, participants can take advantage of free health screenings & hear presentations by prominent doctors and researchers on current research advancements in oncology, psychiatry, respiratory, and Alzheimer's disease.

Keynote speaker Simon Denegri from the National Institute for Health Research (NIHR) and Chair of INVOLVE said: "A recent survey conducted by the NIHR Clinical Research Network showed that 95% of people feel it's important to them that the NHS carries out clinical research but less than 21 per cent said they would feel very confident about asking their doctor about opportunities".

He continued: "I am delighted to be speaking at the first London AWARE for All event. In aiming to break down the barriers for UK citizens in understanding and accessing information and opportunities in clinical research it builds on the work that NIHR has pioneered with its 'Ok to ask' campaign. This is vitally important in order to increase confidence, knowledge and ultimately participation in clinical research which is essential for future medical advancement in the UK."

Whilst AWARE for All London can be attended by anyone, advanced registration is strongly encouraged through the http://www.awareforall.org website or by calling +44 (0) 1753 833348.

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ABOUT CISCRP:

The Center for Information and Study (CISCRP) is a 501(c)(3) non-profit organization dedicated to engaging the public and patients as partners in the clinical research process. CISCRP provides free education and outreach to the general public and patient communities. Visit http://www.CISCRP.org for more information or to support CISCRP's educational initiatives.

Editor's Note

Community collaborators include: Alzheimer's Society, the Association of Clinical Research Professionals, the Association of Medical Research Charities, Bloodwise, The Camden Outreach, DrugDev, European Patients' Forum, iCAN/KIDS, Imperial College London, Institute of Child Health, Kings College, London Cancer, Myeloma Patients Europe, Parkinson's UK, Patient Led Research Hub, Solutions 4 Health, Stop Smoking, Synexus, TrialReach, University College London, and many other prominent collaborators.

Funding for this event has been provided by Merck, the Association of Clinical Research Professionals, and local sponsors. The Camden Outreach will provide free NHS health checks to Camden residents and individuals with GPs in Camden, as well as referrals to Smokefreelife Camden, which includes a FREE Stop Smoking service with Nicotine Replacement Therapy and support. A number of exhibits will also be onsite, providing information and resources.

References:

Censuswide consumer poll of 3,000 people in England, commissioned by National Institute for Health Research (NIHR) Clinical Research Network in September 2014. Available at: https://www.crn.nihr.ac.uk/blog/news/south-west-bus-passengers-hear-its-ok-to-ask-about-research/

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