PPIE Graphical Abstract (IMAGE)

Keio University

PPIE Graphical Abstract

Caption

This study examined patient and public involvement and engagement (PPIE) in allergy research in Japan through a comparative survey of patient advocacy groups (PAGs) and principal investigators (PIs). 
Allergy PAGs showed higher engagement and stronger recognition of PPIE necessity compared to other disease areas, while researchers demonstrated limited awareness and formal rules. 
Key unmet needs included training programs, coordinators to facilitate collaboration, and practical toolkits. 
The findings highlight gaps between PAGs and researchers and provide insights to guide national and global efforts for advancing patient-centered allergy research and for sustainable and effective PPIE.

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© 2025 Utako Okata-Karigane and Takeya Adachi et al., Keio University School of Medicine. Used with permission.

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