News Release

Two abstracts using Bronchiectasis and NTM Research Registry data presented at European Respiratory Society Congress

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COPD Foundation

Miami (October 2, 2025) – The Bronchiectasis and NTM Association announced today that two abstracts using Bronchiectasis and NTM Research Registry data were presented at the European Respiratory Society Congress, held September 27-October 1, 2025, in Amsterdam, Netherlands.

The abstracts are:

  • “Exploring the overlapping burden of alpha-1 antitrypsin deficiency and bronchiectasis: insights from the US BRR,” which examined the role of alpha-1 antitrypsin deficiency in the development of bronchiectasis.
  • “Assessing Exacerbation History and Bronchiectasis Management in the US Bronchiectasis and NTM Research Registry (BRR),” which studied treatment methods in adult patients with bronchiectasis.  

The Registry, an initiative of the Bronchiectasis and NTM Association, is a national database that collects clinical data from individuals diagnosed with non-cystic fibrosis (non-CF) bronchiectasis and nontuberculous mycobacterial (NTM) pulmonary disease. It includes participants from multiple clinical institutions across the United States to help support collaborative research and planning of multi-center clinical trials.

The Registry is supported by the Richard H. Scarborough Bronchiectasis Research Fund, the Anna-Maria and Stephen Kellen Foundation, a Research Grant from Insmed Incorporated, and the Bronchiectasis and NTM Industry Advisory Committee, which includes a Research Grant from AstraZeneca.

For more information about the Bronchiectasis and NTM Research Registry, visit www.bronchandntm.org.

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About Bronchiectasis and NTM Lung Disease

Bronchiectasis is a chronic lung disease characterized by enlarged airways that are thickened and/or scarred. These permanently widened airways lead to a buildup of mucus and impaired clearance of bacteria from the lungs. Between 340,000 and 522,000 adults are receiving treatment in the U.S.

Nontuberculous mycobacterial (NTM) pulmonary disease is a chronic respiratory condition caused by certain types of mycobacteria commonly found in the environment, such as in soil and water. NTM pulmonary disease predominantly affects individuals with compromised immune systems or pre-existing lung conditions, such as bronchiectasis and chronic obstructive pulmonary disease (COPD). NTM lung disease affects tens of thousands of individuals in the U.S. with rates of infection on the rise.

About the Bronchiectasis and NTM Association 
The Bronchiectasis and NTM Association is a nonprofit organization whose mission is to improve the lives of people with bronchiectasis, nontuberculous mycobacterial lung (NTM) disease, or both conditions. The Association accomplishes this by providing education, supporting advocacy, furthering research, and advancing high-quality, specialized care. For more information, visit www.bronchandntm.org.  


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