"There is a lot known about caring for people with Alzheimer's disease and a lot of resources are available," according to Stephen McConnell, a principal with the Alzheimer's Association. "However, we are concerned that many clinicians may not be aware of the guidelines and are not utilizing them in their practices."
Attendees (including executive directors, board members, and presidents of medical groups that provide services to Alzheimer's patients and their families) determined that there is widespread agreement among the guidelines, and advised that it would be helpful if clinicians who care for people with Alzheimer’s disease obtain and follow the guidelines provided by their specialty society. Doing so may improve the quality of care provided to these patients. They also agreed on the importance of incorporating practice guidelines into medical education, accreditation, certification and re-certification programs.
With the number of people with Alzheimer's expected to swell from 4 million in 2002, to about 14 million by 2050, "We need to provide tools to help more physicians diagnose and treat people dealing with this devastating disease," said Catherine Rydell, executive director and CEO of the American Academy of Neurology. Representatives of the seven organizations emphasized the following important principles in caring for people with Alzheimer’s disease:
- Alzheimer’s disease is recognizable and can be differentiated from normal aging by clinicians; symptoms are usually first identified by family members and should be reported to their doctors.
- Alzheimer’s disease can be diagnosed with 95 percent accuracy, the same as appendicitis.
- Effective care options exist and can improve quality of life for patients and their caregivers.
- Resources exist in the community for people with dementia and their caregivers and are important elements to quality care.
Contacts: Kathy Stone, American Academy of Neurology, 651-695-2763
Elizabeth Wilson, Alzheimer's Association, 312-335-5814
Daniel Blaney-Koen, American Medical Association, 312-464-4415
Peter Whitehouse, MD,World Federation of Neurology, 216-844-6448
Scott Kramer, American Geriatric Society, 212-308-1414
Joel Streim, MD, American Association of Geriatric Psychiatry, 215-615-3086
Janet Kreizman, American Medical Directors Association, 410-740-9743